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81	Response to Future Forum 2: how information can be improved. About Rare Disease UK Rare Disease UK (RDUK) is the national alliance for people with rare diseases and all who support them. We have nearly 1000 registered me Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-11-03 12:07:52 Hospice Medical terms Genetic Alliance UK Rare disease Healthcare Palliative care Medical record Chronic Health care Health Medicine Epidemiology
82	Responding to the consultation on the UK plan for rare diseases - Practicalities and advice The consultation document and response form is available at: www.dh.gov.uk/en/Publicationsandstatistics/Publications/Publication Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2012-04-18 12:13:05 National Health Service Genetic Alliance UK Epidemiology Health Rare disease
83	A new value-based approach to the pricing of branded medicines: A response from Rare Disease UK About Rare Disease UK It is estimated that 1 in 17 people will be affected by a rare disease1 at some stage in their lives. Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-04-07 05:19:24 Medicine Health economics Pharmacy Epidemiology Rare disease Pharmaceutical industry Orphan drug Genetic Alliance UK National Institute for Health and Clinical Excellence Health Pharmaceutical sciences Pharmacology
84	Frequently Asked Questions Please see below a list of Frequently Asked Questions about the consultation on a UK plan for rare diseases. These are based on the questions Rare Disease UK received from our members during th Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2012-04-24 06:39:02 National Health Service Healthcare in England Health Genetic Alliance UK Rare disease
85	Rare Disease UK Annual General Meeting: Minutes Wednesday 22nd January 2014 – 10.30am – 1.30pm Royal College of Paediatrics and Child Health Royal College of Paediatrics and Child Health, 5-11 Theobalds Road, London, Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2014-02-12 09:19:22 Nursing research Genetic Alliance UK Rare Disease Day Clinical trial Health Epidemiology Rare diseases
86	Response to Future Forum 2: education and training About Rare Disease UK Rare Disease UK (RDUK) is the national alliance for people with rare diseases and all who support them. We have nearly 1000 registered members incl Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-11-03 12:08:09 Medical terms Genetic Alliance UK Rare disease Chronic Health care Patient safety organization Health 2.0 Health Medicine Epidemiology
87	Key Statistics from the RDUK Report ‘Experiences of Rare Diseases: An Insight from Patients and Families’ Diagnosis    Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-06-08 11:04:07 Mastocytosis Myasthenia gravis Genetic Alliance UK Neurological disorders Web 2.0 Medical error Ataxia telangiectasia Health Medicine Autoimmune diseases
88	Improving Lives, Optimising Resources: How a strategy for rare diseases will benefit the people of Wales The National Alliance for people with rare diseases & all who support them Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-06-02 12:00:11 Genetic Alliance UK Health care Rare disease Optimising Management of Angina Socialized medicine Health Medicine Epidemiology
89	Rare Disease UK Annual General Meeting 2011 Monday 12th September – 11am – 12:30pm National Council for Voluntary Organisations Regent’s Wharf, 8 All Saints Street, London, N1 9RL Management Committee in attendanc Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2014-02-12 09:18:38 Rare diseases Epidemiology Genetic Alliance UK Health Medicine National Institutes of Health
90	Minutes of Rare Disease UK’s Annual General Meeting Monday 13th September 2010 Nation Council for Voluntary Organisations Regent’s Wharf, 8 All Saints Street, London, N1 9RL Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2010-11-30 15:21:41 Rare diseases Health Genetic Alliance UK

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